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Yes you can, my little man! 💙

  • nicoleedwards254
  • Sep 25, 2022
  • 1 min read

When Arlo was diagnosed with CF, I actually asked his paediatrician if I could take him out in the pram with the rain cover on if it was raining because I wondered if there was a risk with water or damp or condensation on the rain cover. I even asked his team if it was okay to walk through our town centre where the traffic is busy and the pollution might be bad. I would put blankets down on bone-dry grass as the idea of the soil below freaked me out. The list goes on …

Upon that first diagnosis, I could see risk in so many places. It’s a scary world for a parent dealing with those first throes of a CF diagnosis.

The idea of him playing rugby was certainly beyond me then!

But with a bit of time, with educating myself, and getting comfortable with making informed decisions, or making some small or creative alterations to make an activity safe for him, there’s really not many things that Arlo misses out on.

Yes, you can! 🙌






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Arlo’s Army: We Won’t Stop Until CF Does

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

 

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.


Join Arlo’s Army today.

 

Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.

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