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The night before Christmas 🎄 - the CF edition 💛

  • nicoleedwards254
  • Dec 24, 2021
  • 1 min read

’Twas the night before Christmas when all through the house,

The sterilizer was whirring, courtesy of my spouse,

The pep mask was ready, next to the gym ball,

Presents under the tree, and stockings for all,

Arlo was nestled all snug in his bed,

A few coughs on the baby monitor echo in my head,

I’m still wearing my face mask, protecting my bub,

How sad that this year we can’t go to the pub!

My arm still a’ throbbing from my booster jab,

To protect the vulnerable it’s really not so bad,

When straight from the kitchen arose such a clatter,

I sprang from my seat to see what was the matter,

There in the room, his head in his hands,

Martyn had news that could ruin our plans,

The meds had fallen all over the floor,

Thank god for our cupboards loaded up with more!

Cystic fibrosis at Christmas can be pretty mad,

But for our wonderful son we’re eternally glad! 💛





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Arlo’s Army: We Won’t Stop Until CF Does

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

 

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.


Join Arlo’s Army today.

 

Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.

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