top of page

Always a smile when we’re finished! 🙏💙😅

  • nicoleedwards254
  • Sep 21, 2022
  • 1 min read

This nebuliser is the shiz - it’s DNASE ✌️

Arlo started a DNase nebuliser last October after his first hospital admission.

A nebuliser changes liquid medication into a mist so that it can be breathed into the lungs. The benefit is that the medicine can go straight into the lungs where it is needed (rather than travelling all around the body). Some medications for lung infections are actually only available as nebulised medication. And compared to inhalers, much larger doses can be given.

DNase is a once daily nebulised ‘recombinant human deoxyribonuclease’ (aka rhDNase; dornase alfa; Pulmozyme). Bit of a tongue twister eh?! 👅

It is the most widely used mucoactive therapy in patients with CF. It reduces the viscoelasticity (read stickiness/thickness) of mucus in the lungs and therefore helps with the clearance of secretions from the lungs.

Arlo’s nebuliser lasts 10 minutes and we do it every morning at the end of his morning treatments.

Sometimes we breeze through it, other times he is not a fan. And there’s days in between. But we always get a smile at the end! 😍



Comments


Post: Blog2_Post
Arlo’s Army: We Won’t Stop Until CF Does

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

 

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.


Join Arlo’s Army today.

 

Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.

IMG_4873.HEIC

©2021 by What the CF?. Proudly created with Wix.com

bottom of page