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A year ago today we found out about the little fault in your genes 🧬

  • nicoleedwards254
  • Aug 25, 2021
  • 1 min read


And I think you were glad that we finally knew 😍 Always such a smiley boy 💙

On this day last year Arlo’s paediatrician had come round to our house to tell us that cystic fibrosis had flagged up in Arlo’s newborn blood tests.


I remember being so shocked - and it’s been a rollercoaster ever since. But I wouldn’t change a thing. It’s not easy at times. CF is complex in so many ways - for both Arlo and for us as his parents. But I don’t waste any energy thinking about what if’s or why us.


This is us. And it’s perfect. 💕





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Arlo’s Army: We Won’t Stop Until CF Does

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

 

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.


Join Arlo’s Army today.

 

Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.

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