top of page

Little CF wrinkles

  • nicoleedwards254
  • Feb 25, 2021
  • 1 min read

Updated: Feb 27, 2021


This is known as aquagenic wrinkling.


It happens to all of us if we really soak ourselves in the bath but it happens for those with cystic fibrosis much more quickly - the term is hyperwrinkling. It happens within 2 to 5 minutes.


Aquagenic wrinkling is actually considered a clinical sign of cystic fibrosis and is seen in as many as 80% of people with the disease.


Really interestingly it has also been reported in people who are cystic fibrosis carriers, although the sign can take slightly longer to manifest following water immersion in carriers.


So there it is - our wrinkly little salty boy 💙 Love him so much 💕💕💕💕


Comments


Post: Blog2_Post
Arlo’s Army: We Won’t Stop Until CF Does

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

 

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.


Join Arlo’s Army today.

 

Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.

IMG_4873.HEIC

©2021 by What the CF?. Proudly created with Wix.com

bottom of page