It’s just a bit shit.

I’m normally pretty positive about Arlo’s CF but today I’m angry at it. It can f***ing do one!

I’m worried. I feel powerless. Arlo has been coughing until he is sick. Admission for IVs is on the cards. And I’m not sure I can go another night listening to Arlo coughing over the baby monitor. And I just wish there was more I could do for him and that I could take all of it away from him.

Arlo is so incredible - still smiling and wanting to play - complying with the new medication and new treatments without a fuss.

And he’ll always have me smiling with him - giving him every ounce of positive energy I have. Making every day fun and finding laughter no matter what! Cause I’m a true believer that the energy I bring is one of the most important parts of Arlo’s fight - with this particularly aggressive cough and with his CF in general.

But now he’s gone to bed (albeit it coughing away rather than sleeping), I just feel like it’s taking its toll on us all this week. So this is me saying FU CF. 🙁