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What a privilege it is to feel (and be) healthy šŸ™

  • nicoleedwards254
  • May 11, 2021
  • 2 min read

I had a cold/bug of some kind (no - not Covid thankfully šŸ™) the last 5 days and yesterday I suddenly felt ā€˜healthy’ again. You know when you’ve been poorly and you have that moment of relief where you realise you feel really good again?


And it made me think how incredibly precious good health is. I woke up feeling strong, positive, ready to go. Mentally I felt different, not just physically.


And this shouldn’t be something that some people have to fight for. And yet I know that this is the reality for so many people.


But it’s especially rough when it’s your child - whether they’re doing the daily physio and meds that CF brings, or they’re in hospital fighting a tougher fight - children should be playing, discovering, learning, eating, smiling … and everything else.


That’s why I’m running and raising money. Arlo has the daily haul of pep and medication - and I count my blessings that he doesn’t currently need anything more invasive. But this account has made me so aware of how many babies with CF have a much rougher start in life. And for all babies with CF it can flip on its head with one bad bug or an unlucky circumstance so as CF parents we are all just living in the present and taking it day by day when it comes to the health of our little ones.


Not really sure where I am going with this one as it came to me pretty spontaneously? Is there a call to action? I think my point is that good health is such a gift that so many of us take for granted - and I see it in a whole new light now that I am part of a family where we have to put in the work every day for our little man to stay healthy.


Let’s be grateful for every healthy day šŸ’œ




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Arlo’s Army: We Won’t Stop Until CF Does

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

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CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

 

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.


Join Arlo’s Army today.

 

Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.

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