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CF and weight gain: before creon, 1 month of creon, 6 months of creon💙

  • nicoleedwards254
  • Feb 23, 2021
  • 1 min read



When Arlo was born I remember thinking he was tiny but at the time I never really saw him as skinny or ill.


But looking back at some of these photos I can’t believe how thin his arms and legs were! And I’m no longer surprised that the midwives and health visitors gave me so much abuse and told me I couldn’t possibly be feeding him enough. It was seriously rough on me in those first 3 weeks when we didn’t know he had CF and was pancreatic insufficient. All blame goes on the mum for weight gain and it is a b****! 😣


(Btw I persevered with breastfeeding and we are still going strong so never give up if you don’t want to mamas!🙏)


Creon is absolute f***ing magic 🪄 and I love how happy and healthy Arlo looks 6 months into taking it!


Keep it up my boy💙💙💙💙💙 SO PROUD OF YOU!

 
 
 

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CF Mama Doin' A Runner for the CF Trust UK

In January, I set myself the challenge to run the distance from Lands End to John O'Groats (1,083.8 miles) to raise money for the CF Trust UK - a charity that supports families with CF, assists with pivotal research and drug developments, and helps to raise awareness of the condition. If you would like to make a donation please click the button.

Thank you x

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